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I'm Not Sure If This Can Be Fixed..........................


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#31 JVC Floyd

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Posted 08 May 2018 - 05:50 PM

Hell if it was my pleasure killing me I live forever cuz I don't have too many.
I gave up on pleasure .I aim towards relief lol.

#32 ford93

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Posted 09 May 2018 - 05:56 AM

Many thanks for all the replies, advice, suggestions and support.

 

Yes, my lungs are definitely farked and they are now as they will stay so little can be done there apart from lifestyle adjustments which, essentially, means slow down and take things easy for a change:-O  :-/  :no:  The gastric/stomach and throat issues are much more serious and immediate but remedies are restricted due to the lungs, that's the simple sentence to describe what's going on.  It's complicated, not nice to experience and I'm showing more than a handful of symptoms all of the time.

 

Quite a few of the many symptoms have been missed even though I've been telling my doctor's surgery about them since last year and this has angered me to the point I had a heated arguments with the obstructive surgery receptionist and an argument with a doctor who couldn't even read my medical notes correctly on my last visit - I am now registering with another practise after telling the obnoxious receptionist to "Fook Off" along with a few other choice words.  :w00t:

 

Sorry again chaps, I'm not unloading on y'all, it's just that I have few folk to tell or share this with (just one close friend and St Nick as I have no close family or family of my own).  I'm still listening to music like there's no tomorrow (pun intended :yes: ) and today's lucky dip has been Manuel and the Music Of The Mountains, The Scorpions and a bit of Etta James (a wonderful artist with passion in her voice).  Yesterday I serviced a Hi-Fi tape deck for my friend's son, he'll be impressed I did this!  :yes:  :-D

 

Damn Christine you just serviced a tape deck!!

 

Got to give you props on that!

 

Totally agree on Etta James, but she also had it rough but kept on going with her career including Billie Holiday and Nina Simone just to name a few.

 

For your listening pleasure here's a wonderful rendition of Jay Hawkins - "I Put a Spell On You"

 

Enjoy!

 



#33 MyOhMy

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Posted 09 May 2018 - 06:53 AM

I would rather have my Pleasures kill me than my miseries.

 

Ain't that the truth!   :yes:  

 

 

 

 

Damn Christine you just serviced a tape deck!!

 

Got to give you props on that!

 

Totally agree on Etta James, but she also had it rough but kept on going with her career including Billie Holiday and Nina Simone just to name a few.

 

For your listening pleasure here's a wonderful rendition of Jay Hawkins - "I Put a Spell On You"

 

Enjoy!

 

 

I read the story of Etta James with sadness, she was so young when she started out on her singing career and vultures took advantage of this.  Her colour was used against her to stifle her popularity but her beautiful qualities and amazing voice would implant her into the minds of millions.

 

I've heard many good versions of "I Put a Spell On You" but this ranks among the best - many thanks for this little treat.  :thumbsup:



#34 MyOhMy

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Posted 13 June 2018 - 03:03 PM

Update:

 

I'm still not very active on the forum, tiredness/lethargy/weakness/whatever being the culprit although some days are better than others.  Most of my sleep periods are short and taken in a sitting position in a chair, it's uncomfortable but less risky than laying down and choking from food 'backing up' due to the S.M.A. Syndrome..

 

I've had a few very difficult periods of trying to breathe as well as the daily struggles of living so my friend came to stay for a few days to help me but, a couple of days after she left, my breathing became so difficult I had to call out the emergency services.  Once the panic was over and I'd resumed a better breathing pattern I showed a paramedic my Boom Room and other audio, cassettes, CD's & Vinyl albums and he was gob-smacked:yes:  :-D  He thought it was all fantastic and I'm sure I could detect a little envy in a twinkly eye.  :yes:

 

Last week I underwent extensive pre-op tests at a local hospital in preparation for surgery, I was told the pharyngeal web in my throat has grown so my status for surgery is now 'urgent'.  I can certainly feel the web getting larger, it's affecting my voice/speech, becoming sore and making swallowing & breathing more difficult & laboured.  This morning I was notified that surgery on my throat will be carried out on Monday 25th June.    :grim:???



#35 T-STER

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Posted 13 June 2018 - 03:41 PM

Shiat thats rough Mom, we will all be rooting for you on the 25th. Would be cool if you updated us as soon as you're out and let us know you're ok. I bet you will feel a ton better once you're out x



#36 JVC Floyd

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Posted 13 June 2018 - 03:51 PM

I hope everything goes well will be pulling for you keep us updated as you can cuz you know we're going to be worried about you.

#37 MyOhMy

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Posted 13 June 2018 - 03:59 PM

Shiat thats rough Mom, we will all be routing for you on the 25th. Would be cool if you updated us as soon as your out and let us know your ok. I bet you will feel a ton better once your out x

 

I'm sure the op will be OK and go well, I have no worries about this.  My biggest concern is recovery from the op as nurses will probably want me to rest on my back but this is the last thing I need as it's far too risky for my breathing.  My friend is certainly well briefed and will be by my side as much as she can be - and she can have any BB she likes, if at all goes wrong, except the GF-9000 which will go to St Nick.  :-D



I hope everything goes well will be pulling for you keep us updated as you can cuz you know we're going to be worried about you.

 

Many thanks for the thoughts.  Once this is over it'll be 1 out of 3 serious things taken care of so I'll be bouncing back in no time!  :yes:  :-D



#38 Hisrudeness

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Posted 13 June 2018 - 04:14 PM

Shiat thats rough Mom, we will all be routing for you on the 25th. Would be cool if you updated us as soon as your out and let us know your ok. I bet you will feel a ton better once your out x

 
I'm sure the op will be OK and go well, I have no worries about this.  My biggest concern is recovery from the op as nurses will probably want me to rest on my back but this is the last thing I need as it's far too risky for my breathing.  My friend is certainly well briefed and will be by my side as much as she can be - and she can have any BB she likes, if at all goes wrong, except the GF-9000 which will go to St Nick.  :-D

I hope everything goes well will be pulling for you keep us updated as you can cuz you know we're going to be worried about you.

 
Many thanks for the thoughts.  Once this is over it'll be 1 out of 3 serious things taken care of so I'll be bouncing back in no time!  :yes:  :-D

Yes you will.

#39 ford93

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Posted 13 June 2018 - 10:50 PM

Update:

 

I'm still not very active on the forum, tiredness/lethargy/weakness/whatever being the culprit although some days are better than others.  Most of my sleep periods are short and taken in a sitting position in a chair, it's uncomfortable but less risky than laying down and choking from food 'backing up' due to the S.M.A. Syndrome..

 

I've had a few very difficult periods of trying to breathe as well as the daily struggles of living so my friend came to stay for a few days to help me but, a couple of days after she left, my breathing became so difficult I had to call out the emergency services.  Once the panic was over and I'd resumed a better breathing pattern I showed a paramedic my Boom Room and other audio, cassettes, CD's & Vinyl albums and he was gob-smacked:yes:  :-D  He thought it was all fantastic and I'm sure I could detect a little envy in a twinkly eye.  :yes:

 

Last week I underwent extensive pre-op tests at a local hospital in preparation for surgery, I was told the pharyngeal web in my throat has grown so my status for surgery is now 'urgent'.  I can certainly feel the web getting larger, it's affecting my voice/speech, becoming sore and making swallowing & breathing more difficult & laboured.  This morning I was notified that surgery on my throat will be carried out on Monday 25th June.    :grim:???

 

Don't let it beat you!

 

You will bounce back and live life to its fullest!!

 

I beat cancer 4 times and lost my mother in Sept. and I'm still here. I will see you back soon!! :yes:



#40 Northerner

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Posted 13 June 2018 - 11:59 PM

Get better soon Christine, we need your positive vibe on here :-)

#41 Lasonic TRC-920

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Posted 14 June 2018 - 12:20 AM

Thank you for the update. I'm siding on the positive here. Once this procedure is complete you'll be in a stronger position and over time will gain strength. 

 

You'll be rockin' a box on your shoulder in no time!



#42 jimmyjimmy19702010

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Posted 14 June 2018 - 01:51 AM

Good luck with your OP Christine. :-)

#43 MyOhMy

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Posted 14 June 2018 - 03:37 AM

Thanks for all the kind words, folks, I appreciate this very much.  A morbid thought did dawn on my tiny mind:

 

Given that the surgeon who wants to operate on my stomach says he can't operate because my lungs are in too poor a condition for general anaesthetic and.........................................the 'throat surgeon' will use 'a/an anaesthetic' for my throat operation (but not a local anaesthetic)...........is he just taking a chance it'll be OK?  :blink:  :-O  Now I'm seeing this:

a) I'm the guinea pig

b) Throat surgeon will be the the scapegoat if it all goes wrong

c) Stomach surgeon will weigh up the odds & chances for his op depending on the outcome of what happens during b)!  :hmmm:  :w00t:  :-D

Yes, that's my thinking now but I'm seeing this with a large dose of humour, I can laugh at this because I can and humour can only be a good thing.  :yes:  At least if it goes wrong I'll not know anything of it!  :yes:  :-D



#44 Fatdog

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Posted 14 June 2018 - 08:13 AM

 

a) I'm the guinea pig

b) Throat surgeon will be the the scapegoat if it all goes wrong

c) Stomach surgeon will weigh up the odds & chances for his op depending on the outcome of what happens during b)!  :hmmm:  :w00t:  :-D

 

All of the above.  :w00t: :lol:

 

But on a more serious note... I imagine that the stomach surgery would be much more invasive / intensive.  I can't see the need for cutting open your abdomen just to work on your throat.  But don't quote me on that.  I'm not a doctor, but I do play one on TV.

 

Try not to stress so much about it.  Stress and worry have been shown to negatively affect overall health.  You are on the right track keeping music and humor close to you.  You've got this, Christine.  You've got this!  :rock: :bow:



#45 Ken

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Posted 15 June 2018 - 10:37 AM

Are they going to let you take a box to the hospital, Christine?

 

Anybody that listens to The Scorpions & Etta James in the same day needs to have her music with her.

 

I'm religious, but I firmly believe that whatever afterlife or next life there is doesn't depend on which particular human's word you took.  Anybody can go. It depends on good works, a kind heart, and above all empathy.  No worries, you have nothing to be concerned about.

 

A calm demeanor, a box, and choice tapes will see you through your stay. I can't wait to hear your stories as you regain your health.  You got this, girl. 



#46 baddboybill

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Posted 15 June 2018 - 12:40 PM

I haven’t been posting in a while but just read this. I pray all goes well for you Christine and you start to feel better!!!

#47 MyOhMy

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Posted 21 June 2018 - 12:14 PM

The plot thickens:

 

I have to report to the hospital at 1130hrs on Monday for surgery, all's good so far however.....................a letter arrived today from a Respiratory Therepist at the Lung Function Room (!) informing me to be there at 1200hrs Monday - during surgery!   :-O  I feel there's a bit of a screw-up cum conundrum with all this:  The throat surgeon needs all the respiratory test results & info prior to surgery BUT (uh-hu, a BIG BUT) the effectiveness of the lung/respiratory tests will be compromised by the pharyngeal web that continues to grow daily in my throat that the surgeon needs to remove.   :bang:

 

I 'phoned the hospital and could detect a bit of a panic on, "We'll get back to you....".  As for the expected information due to me regarding last time to eat & drink prior to surgery and whatever else I need to know, well - it's STILL a case of  :popcorn: !!!  :  :annoyed:

Here's the only thing I know with any certainty at this time:  The web ('web' my arse, it feels more like half a pizza in size stuck in my throat  :-O ) has now grown to the point of causing serious interference in my throat.  I endure a few choking episodes (well, more like choke-lings or choke-ettes at this stage) as the web seems to move or 'flap' around whilst tightening.  A few days ago my voice could only chirp like a baby bird then my voice went down to hoarse growl, it's now somewhere in between but changes either way as I talk.  My throat is also permanently painful.

 

There we have it, joy in all it's forms.  :-/



#48 Lasonic TRC-920

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Posted 21 June 2018 - 11:03 PM

Wow, what an ordeal. Only a few more days to go before you'll be getting some relief. All I can say is, stay calm, focus on Monday. 

 

Maybe you could tell us some stories about your collection, keep your mind in a different place, plus, we love the way you tell stories and we love radio stories!  :w00t:

 

Either way, I have you get some rest this weekend and everything goes smoothly on Monday



#49 Northerner

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Posted 22 June 2018 - 12:17 AM

Yeh doesn’t sound fun at all. But it’ll all work out, we’re all rooting for you Christine :-)

#50 MyOhMy

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Posted 22 June 2018 - 08:33 AM

Thanks, Kind Folks.  

 

 

The hospital called me this morning with a solution to the be-in-two-places-at-one-time scenario:

 

Despite the fact the anaesthetist and surgeon need the respiratory test results prior to my operation (it's previously been agreed too dangerous to proceed with the operations without this info as my lungs are so farked), there is now no time left to reschedule the respiratory tests prior to the surgery so the surgery is planned to go ahead without the tests because the pharyngeal web size is increasing so rapidly no delays can be made.  I could do little more than croak when discussing this with the hospital this morning and my food intake is now minimal but my liquids intake has increased.  :  At least I could scare naughty children in the dark with my dinosaur-like croak and roar!!!  :yes:  :w00t:  :lol:

 

I have complete trust (not 'faith', eh?!) in the health care professionals involved with my treatment but I also appreciate there is no guarantee of a successful outcome given the state of my lungs.  By 'eck, what a to-do! 



#51 MyOhMy

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Posted 22 June 2018 - 08:55 AM

Well well, no sooner had I made my latest post when the hospital rang to say the respiratory tests have now neen rescheduled for 0730hrs Monday morning - there's hope yet although my friend isn't too happy as she is no great fan of life at The Crack Of Doom:yes:



#52 ford93

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Posted 22 June 2018 - 09:02 AM

My thoughts and you know what are with you!!!

 

When it's time to go the operating room keep your mind at ease. Just focus on something else build your confidence relax and just think of happy thoughts. Better yet have them play some of your favorite music I know they can fulfill that request for you.

 

Stay strong Christine and fight the good fight!!

 

See you soon!!!! :-)



#53 MyOhMy

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Posted 22 June 2018 - 09:06 AM

My thoughts and you know what are with you!!!

 

When it's time to go the operating room keep your mind at ease. Just focus on something else build your confidence relax and just think of happy thoughts. Better yet have them play some of your favorite music I know they can fulfill that request for you.

 

Stay strong Christine and fight the good fight!!

 

See you soon!!!! :-)

 

Ah, you've warmed my heart with your words.  :smooch:

 

I have absolutely no worries about the surgery or how it pans out, if I'm out cold when things go wrong then I'll just get colder without even realising it.  :-D



#54 Fatdog

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Posted 22 June 2018 - 10:05 AM

You will be just fine, Christine.  There is too much fire in you to burn out this quickly.  Like Juan said, request to have them play your favorite tunes during surgery, and if they don't have the means, tell them you'll bring a boomer.

 

Also, since you will be "loopy" after surgery, maybe give a close friend access to your account so they can give us a post-surgery report.  :yes: :yes:



#55 MyOhMy

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Posted 22 June 2018 - 11:06 AM

You will be just fine, Christine.  There is too much fire in you to burn out this quickly.  Like Juan said, request to have them play your favorite tunes during surgery, and if they don't have the means, tell them you'll bring a boomer.

 

Also, since you will be "loopy" after surgery, maybe give a close friend access to your account so they can give us a post-surgery report.  :yes: :yes:

 

I'm sure I'm seen as just another ol' fogey clogging up the health care system but I don't feel like that, I'd like nothing more than to get blind drunk at a wild party with loud music - ya know, just like the ol' days...................... :-D  So, just in case........I'll be showing my friend around my lappy and where the link to this site is, where the password is kept, who to contact with a few BB's to give away............................................ya know, just in case; Ask her to explain to y'all how much of a positive impact you've had on me with special thanks to couple of outstanding suspects here...............ya know, just in case.  :-)  Happy days!  :-D



#56 Northerner

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Posted 22 June 2018 - 12:31 PM

You’ll be back on here in no time Christine :-)

#57 ford93

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Posted 24 June 2018 - 11:17 AM

 

My thoughts and you know what are with you!!!

 

When it's time to go the operating room keep your mind at ease. Just focus on something else build your confidence relax and just think of happy thoughts. Better yet have them play some of your favorite music I know they can fulfill that request for you.

 

Stay strong Christine and fight the good fight!!

 

See you soon!!!! :-)

 

Ah, you've warmed my heart with your words.  :smooch:

 

I have absolutely no worries about the surgery or how it pans out, if I'm out cold when things go wrong then I'll just get colder without even realising it.  :-D

 

Aww shuks! :blush:

 



#58 MyOhMy

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Posted 24 June 2018 - 03:08 PM

Well, the time is almost upon me.  I've gone without food since last night and enjoyed a light liquid diet today in preparation for the op tomorrow.  My friend has arrived to stay with me and be by my side for the duration, I don't know what I'd do without her.  I spoke with Nickeccles again last night, he managed to lift my spirits with his usual mix of informed advice, endless humour and reassurance - it's what I needed to end a day that began with a 2hr weep-athon when I struggled so desperately to breath during 'an episode' very early this morning.

 

Anyway, there's little further to add at this point, if I survive then I'll let you know and if I don't survive then Hazel will fill you all in with the gory details!  :yes:  :w00t:  :-D



#59 T-STER

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Posted 24 June 2018 - 03:25 PM

Mom its easy to say "you'll be fine" but you know what, im convinced its true. There is so much positivity streaming your way that if there is any justice in the world we will be getting an update from you tomorrow. Im not a the praying type but i will cross everything



#60 MyOhMy

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Posted 24 June 2018 - 03:34 PM

Mom its easy to say "you'll be fine" but you know what, im convinced its true. There is so much positivity streaming your way that if there is any justice in the world we will be getting an update from you tomorrow. Im not a the praying type but i will cross everything

 

:smooch:

 

G'night all, keep BB'ing.  :yes:  :thumbsup: